Life with Landree

Our Baby Girl

Why a blog????

I recently read an article that said 92% of all pregnancies with a diagnosis of Down Syndrome are terminated. I couldn't believe it! That's one of the saddest things I have ever heard. I can't make that percentage be zero, but I can make a difference by telling our story. My goal is to show others what life is really like with a child that has Down Syndrome and how much they are like any other child. Every child has their own set of hurdles. The only difference is that we have an idea of what some of the hurdles could be for a baby with Down Syndrome. I think that's the scary part. Sometimes its easier to operate under the ignorance is bliss method. When our daughter Landree was born it seems like all of the information I found was scary and negative. In fact, I quit reading anything about it for months because it was too upsetting. The positive stories I did find were from families in big cities that told about all the different therapies available. That was depressing to me too. I worried that our small town wouldn't have the resources available that Landree needed. I couldn't find a happy story that I could relate to. I'm no expert, but I can share my experiences. I will post updates and pictures of what Landree is up to. She's only 7 months old but so far it's been a wonderful, joyous journey that I'm expecting to get better and better.

See the menu on the upper left side of the page to visit the blog page or to read about Landree's birth.

Be sure to check back for more pictures, videos and updates of Landree!

I can't believe we were surprised!

You would think that anyone who went to a specialist every month because of an increased risk of Down Syndrome wouldn't be surprised when their baby girl was born with Down Syndrome. Well.....guess what. We were surprised!

When my husband and I found out I was pregnant we were ecstatic! My husband Rick is 47 and is a wonderful step father to my 8 year old son, Will. He's great with kids but has never had any biological children of his own. We were so excited to add a new member to our family. Rick was so excited about the pregnancy that he left work early and met me at almost all of my doctor appointments. In fact, he usually beat me there! I would walk in the office and he had already signed me in and was chit chatting in the waiting room.

I had a sonogram at my first appointment. Of course the person doing the sonogram can't really say anything so I got a phone call at work a couple of days later. It was the last work day before Christmas. The nurse told me they could see a small bleed in my uterus. She said it probably wasn't a big deal. They would just keep an eye on it. The next month I had a sonogram that showed the bleed was better but not completely gone. They would check it again the next month. One month later the bleed was finally gone. The usually outgoing woman doing the sonogram was still friendly but Rick and I both noticed she was more reserved. We didn't think too much about it though. We were also able to find out that we were having a baby girl! We had hoped to be able to tell the sex of the baby but knew it might be too early. It was such a relief that everything would be normal now.

When we got home we told Will the good news. To say he wasn't thrilled would be an understatement. He didn't say much when we first told him. He went upstairs to his room and I heard him screaming "It was supposed to be a boy!" For months he refused to accept that he would have a baby sister. He still told people we were having a boy and that his name would be Raymond. I have no idea where Raymond came from. Luckily he FINALLY came around right before Landree was born. He loves his baby sister.

A few days later I got a phone call from the doctor's office. The nurse told me that they saw a bright spot on the baby's heart. She explained that it was common and may go away on its own. She told me that sometimes it can be nothing but is sometimes related to Down Syndrome. They did some blood work but called a few days later to tell me that it was normal. I was referred to a specialist just as a precaution.

My first visit to the specialist went well. I actually enjoyed my monthly visits. They had the really high tech sonogram equipment so we could see the baby pretty clearly (for a sonogram anyway). We even got a 3-D picture. The only problem was that Landree always seemed to have one hand up over her face covering her eyes. The specialist didn't see anything abnormal in the sonograms other than the bright spot on her heart. None of the other markers were present. She couldn't guarantee that the baby didn't have Down Syndrome but she didn't see any of the indicators. She looked in my file and saw that the blood work done earlier was actually for Spinabifida and not Down Syndrome. They had done the wrong test. She suggested we do the blood work for Down Syndrome just for peace of mind.

A few days later I got a phone call from the nurse. The blood work showed that there was an increased risk of Down Syndrome. A genetic counselor contacted me to explain things a little better and see if we wanted to do an amnio. Luckily she was wonderful. I've heard horror stories of doctors pressuring people to have the amnio or even to terminate the pregnancy. She wasn't like that at all. Rick and I decided we didn't want to do the amnio. The sonograms looked fine and we wouldn't have terminated the pregnancy anyway. We decided it wasn't worth the risk. We would just deal with things as they came.

Rick and I look back and laugh at how dumb it was that we were so surprised Landree was born with Down Syndrome. All those months we prayed and prayed that our baby would be healthy. Our church family prayed for us too. I guess I just believed in our prayers so much that I put it out of my mind. I trusted God and just knew that our baby would be fine. Well....she was! God gave us a perfectly healthy baby girl with Down Syndrome. We didn't ask that she wouldn't have Down Syndrome; we just asked that she was healthy. That's exactly what we got. I think that is so funny. He knew exactly what he was doing. I like to think we're fairly rational people (most of the time). We shouldn't have been surprised. Now that we know, we can even see that the one eye she let us see in the sonogram did look a little like it had the characteristics of Down Syndrome. I think if we had gotten a clear look at her little eyes we would've suspected it, but she wasn't moving that hand. God obviously knew I was a worrier so he kept it a surprise. I would've worried all those months for nothing. She's a miracle. She was born perfectly healthy and only spent 30 minutes in the NICU. It all fell into place just like God planned. We're so blessed!

LiveLife 20.05.2015 20:06

Shes so cute

Tracy Healy 22.05.2013 20:22

Great Story! Babies do not get to choose their parents, and vise versa. Looks like you all won the LOTTO!! Both of your children are beautiful, congrats!!

Anna 01.04.2013 18:34

Such a touching story! You're little girl is a doll.

Carla Frost 01.04.2013 03:41

I love your story, we have a lot in common. We knew we had a chance of having a DS child, so it was no surprise. Our faith gave us clarity - and a healthy baby

Rebecca 31.03.2013 19:13

Thank you so much for sharing! My family may be adopting a child with DS some day because of the light you've shed. God bless your lovely family.

Taylor Butler 30.03.2013 17:18

Your family is so amazing! I am inspired by each and every one of you. You are so positive. Thank you for sharing your story!

Nikki Snadon 25.02.2013 23:18

Hi guys, this is Nikki from church! Sorry it has taken so long to get on here but I read your story and will do my best to help get people to check out ur site.

luqman 07.02.2013 16:02

Awwwww.... I'm like you i can't believe people will terminated a blessing.. Im happy for you and your family because GOD blessed you with a LIFE..

Teresa Manuel 03.02.2013 19:56

I have the honor of knowing this family. This baby is such a blessing to them and to all of us that get to watch her grow up! Blessings and love to all. Teresa

Shonda Len 31.01.2013 06:57

Shes a blessing and is truly blessed to have such a genuinely close loving family that will always love her for just being Landree!

Joan Davis 30.01.2013 07:52

God gives special children to special parents. I've always known you and Rick would be very special parents. Enjoy every sweet day with that beautiful Landree

Leslie 30.01.2013 04:58

I really enjoyed reading this story about this perfect blessing. I think Landree is a lucky Lil girl to have such a great mommy)

Tracymramsey@rocketmail.com 30.01.2013 01:04

Shes a tutti fruity! ! Sweet girl that love her aunt Tracy! ! Lol

Cadie 29.01.2013 23:41

I love my sweet baby girl!

Sherry 29.01.2013 22:47

All of God's children are blessings. Love your blog you have created. Yes God gave you guys a beautiful blessing and you named her Landree!

Tina Braziel 29.01.2013 19:48

She's beautiful! I have a neice with DS. She's 6 years old and perfect. I wouldn't change a thing about her! Congrats!

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Latest comments

11.06 | 05:13

This is looking great. Thanks for sharing with us. I appreciate it.

Rich,
http://YourBabyBlog.com

15.02 | 03:00

i go to Church with her Landree at Open Range Cowboy church in whitney texas and she is the Sweetest Little girl ever i love talking to Her

06.08 | 20:30

I have been following your page on Facebook and every single time I see Landree I think I fall more in love with her. You have a beautiful family.

20.05 | 20:06

Shes so cute